I haven't exactly shouted it from the rooftops, although I assume most of you know by now, but Guy is autistic. His official diagnosis is that of Autism Spectrum Disorder.
Yes, we had him tested. Yes, it's "official". We didn't just pull this out of our arses.
No, there is no cure -- it's just part of who he is.
No, he doesn't "look" autistic. What exactly does that look like anyhow?
Yes, he's still just Guy, but now we have a pretty hazy picture of what the future holds for him and for us.
Some scary facts? The CDC now reports that 1 in 50 children are affected by autism and Utah has one of the highest rates of autism in the nation. Super awesome, right?
In case you were wondering how Guy ended up with this diagnosis, lets take a look at the official diagnostic criteria (according to the DSM V), shall we? Pay particular attention to the text in blue, as that is where Guy fits into all of this.
Autism Spectrum Disorder 299.00 (F84.0)
Diagnostic Criteria
A. Persistent deficits in social communication and social interaction across multiple contexts, as manifested by the following, currently or by history (examples are illustrative, not exhaustive):
- Deficitis in social-emotional reciprocity, ranging, for example, from abnormal social approach and failure of normal back-and-forth conversation; to reduced sharing of interests, emotions, or affect; to failure to initiate or respond to social interactions.
- Deficits in nonverbal communicative behaviors used for social interaction, ranging, for example, from poorly integrated verbal and nonverbal communication; to abnormalities in eye contact and body language or deficits in understanding and use of gestures; to a total lack of facial expressions and nonverbal communication.
- Deficits in developing, maintaining, and understanding relationships, ranging, for example, from difficulties adjusting behavior to suit various social contexts; to difficulties in sharing imaginative play or in making friends; to absence of interest in peers.
B. Restricted, repetitive patterns of behavior, interests, or activities, as manifested by at least two of the following, currently or by history (examples are illustrative, not exhaustive):
- Stereotyped or repetitive motor movements, use of objects, or speech (e.g., simple motor stereotypes, lining up toys or flipping objects, echolalia, idiosyncratic phrases).
- Insistence on sameness, inflexible adherence to routines, or ritualized patterns or verbal nonverbal behavior (e.g., extreme distress at small changes, difficulties with transitions, rigid thinking patterns, greeting rituals, need to take same route or eat food every day).
- Highly restricted, fixated interests that are abnormal in intensity or focus (e.g, strong attachment to or preoccupation with unusual objects, excessively circumscribed or perseverative interest).
- Hyper- or hyporeactivity to sensory input or unusual interests in sensory aspects of the environment (e.g., apparent indifference to pain/temperature, adverse response to specific sounds or textures, excessive smelling or touching of objects, visual fascination with lights or movement).
C. Symptoms must be present in the early developmental period (but may not become fully manifest until social demands exceed limited capacities, or may be masked by learned strategies in later life).
D. Symptoms cause clinically significant impairment in social, occupational, or other important areas of current functioning.
E. These disturbances are not better explained by intellectual disability (intellectual developmental disorder) or global developmental delay. Intellectual disability and autism spectrum disorder frequently co-occur; to make comorbid diagnoses of autism spectrum disorder and intellectual disability, social communication should be below that expected for general developmental level.
Severity level
|
Social communication
|
Restricted, repetitive behaviors
|
Level 3
"Requiring very substantial support” |
Severe deficits in verbal and
nonverbal social communication skills cause severe impairments in
functioning, very limited initiation of social interactions, and minimal
response to social overtures from others. For example, a person with few
words of intelligible speech who rarely initiates interaction and, when he or
she does, makes unusual approaches to meet needs only and responds to only
very direct social approaches
|
Inflexibility of behavior, extreme
difficulty coping with change, or other restricted/repetitive behaviors
markedly interfere with functioning in all spheres. Great distress/difficulty
changing focus or action.
|
Level 2
"Requiring substantial support” |
Marked deficits in verbal and
nonverbal social communication skills; social impairments apparent even with
supports in place; limited initiation of social interactions; and reduced or
abnormal responses to social overtures from others. For example, a
person who speaks simple sentences, whose interaction is limited to
narrow special interests, and how has markedly odd nonverbal communication.
|
Inflexibility of behavior,
difficulty coping with change, or other restricted/repetitive behaviors
appear frequently enough to be obvious to the casual observer and interfere
with functioning in a variety of contexts. Distress and/or difficulty
changing focus or action.
|
Level 1
"Requiring support” |
Without supports in place, deficits
in social communication cause noticeable impairments. Difficulty initiating
social interactions, and clear examples of atypical or unsuccessful response
to social overtures of others. May appear to have decreased interest in
social interactions. For example, a person who is able to speak in full
sentences and engages in communication but whose to- and-fro conversation
with others fails, and whose attempts to make friends are odd and typically
unsuccessful.
|
Inflexibility of behavior causes
significant interference with functioning in one or more contexts. Difficulty
switching between activities. Problems of organization and planning hamper
independence.
|
If you still have questions, just ask! Oh and do some reading on the interwebs -- start here: Autism Speaks.
Thanks for the breakdown. That is helpful to read about it in a condensed version. Especially with the highlighted areas.
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